Nottingham, Nottinghamshire, UK, March 06, 2017 -- In Support of the BLS Lymphoedema Awareness Week, PhysioPod® UK Ltd share the story of three year old Lincoln to raise awareness of both Primary Lymphoedema and DEEP OSCILLATION®, a gentle, pleasant, non-invasive and effective treatment option, which is used in several NHS Lymphoedema Clinics and by private MLD DLT Practitioners. It is also used more and more, by Lymphoedema sufferers at home and abroad, tackling tissue changes which air travel may have caused.

DEEP OSCILLATION® therapy now forms a firm part of daily routine for 3 year old Lincoln and his family; improving and maintaining the symptoms of his Primary Lymphoedema and improving his mood, with less irritability; enabling him to take part in longer family walks and now wearing 'shop-bought trainers' for the first time ever. A successful trial of the therapy has happily resulted in an investment in the personal unit. Inevitably, when Lincoln's successful results have been shared by his parents on social media to the parents of other children with Lymphoedema, several questions have been raised, including the availability of the therapy in the NHS.

Background

During a routine 20 week scan Lincoln's parents were informed that their unborn child had a rare condition known as Lymphoedema and were told that medical staff could not determine as to how debilitating this would be and whether he/she would be born with any other disabilities. This was heart rendering for them and their elder daughter Scarlett, nevertheless, they remained optimistic and continued with the pregnancy and on 2nd February 2014, Lincoln was born. Lincoln showed signs of Lymphoedema on both lower limbs but most significantly his feet. Since Lincoln’s birth, they have persistently attended the hospital to be referred to multiple and varying healthcare professionals. It was several months before they knew as to what extent Lincoln’s Lymphoedema would affect him in life and how much it would change their lives as parents. They were told that due to the extent of the swelling on his feet, he may never walk or get to wear a pair of shoes, news again which was soul destroying. In Sept 2016, Lincoln and his family attended the Children’s Lymphaletics Event organised by Denise Hardy and the Children's Lymphoedema Special Interest Group (CLSIG) in Sheffield. It was at the event, they met PhysioPod and learned for the first time about DEEP OSCILLATION®, an effective, non-invasive electrostatic massage tool used in clinic therapist to patient, for parent-to-child treatment and for self-management at home and abroad. In December 2016, the family began a trial of the DEEP OSCILLATION® Personal Sport for Lincoln with impressive results and to their delight, Lincoln happily became involved in self-management. They have now decided to invest in a personal unit, such is the difference it has made to Lincoln's condition and his quality of life. The following is feedback from Lincoln's Mum and Dad, Keylie Thomas & Chris King:

From Mum and Dad..

"Lincoln is 3 years old, he is a very happy, content and articulate little boy with an infectious smile that could melt anyone’s heart. Lincoln has Congenital Lymphoedema of both lower limbs but most significantly his feet. Since Lincoln’s birth we have persistently attended the hospital; it took several months before we knew as to what extent Lincoln’s Lymphoedema would affect him in life and how much it would change our own lives as parents. We have been attending St Giles Hospice Lichfield (Lymphoedma clinic) with Lincoln since the age of 1. It is thanks to family and friends that we were told of the clinic and then furthermore introduced to Helen Young, Lincoln’s Lymphoedema nurse. With little to no help from the NHS, we were grateful of the help we were, and continue to receive, from Helen, she has been an invaluable part to Lincoln’s life over the past two years. It is thanks to Helen being able to demonstrate the correct technique of manual lymphatic drainage (MLD) to us, that when Lincoln turned two, he was sized and fitted for compression garments that aid in preventing further swelling to Lincolns feet and lower limbs. Helen also got in touch with Children's Physiotherapy which enabled Lincoln to have shoes made for him, so as he became able to walk, unaided at 22 months, he could do so freely outside. This provided us with the peace of mind that he had correctly fitted shoes which included a pair of little blue boots, which he adores and is very proud of; especially with his customised laces. Lincoln has regular routine follow-up appointments at the clinic, where he is regularly sized for new garments and shoes. Something we relish each and everyday, as extremely proud parents, is that he doesn’t walk, he runs! This I must add is significantly down to the amazing unique individual that Lincoln has become. He is an immensely happy and joyful little man who never gives up and always keep going. Lincoln achieved and conquered an enormous milestone by taking steps and walking unaided at the age of 22 months, something we never could of imagined and couldn’t be prouder of him for, this unfortunately doesn’t give him the ability to walk as you and I would or do, he becomes tired and his legs swell massively, if he tries to be the enthusiastic athletic little three year old he aspires to be, meaning that the next day he’s often uncomfortable irritable and swollen and as much as we try to help by doing the MLD, we cannot achieve what we truly hope for. In the late Summer of 2016, we attended a very well-organised event called Lymphaletics, organised by the team above for children and teenagers with Lymphoedema and their families to soclalise, have some fun in the organsed sports events, learn about the latest new, non-invasive developments to help manage Lymphoedema and the children watched some amazing magic and had a disco dance. This was the third National ‘Lymphaletics Day’ and around a hundred families with children suffering from Lymphoedema from around the UK came to the Concord Sports Centre in Sheffield to take part. We found it to be a a positive experience in a very supportive environment. It was at this great event, that we first met the very helpful Denise Hardy (second in from left). As well as providing direct care and support, the CLSIG help to promote awareness of Lymphoedema, promote the provision of effective services and ensure that patients and families of children with the condition, are provided with the help and information that they need. Until recently services have only been available for adults, but there are now some clinics around the country that specifically provide treatment for children. At the event, we saw the PhysioPod being used for demonstration purposes and we were amazed at the potential benefits of what this machine could do; we returned home with a wave of enthusiasm. It is because of this enthusiasm and hope, we asked Helen if she could help with sourcing the machine for a period to trial it. Thankfully Helen, who has been nothing but a shining star to us, very kindly helped us get in touch with Denise Hardy, again who was extremely kind and forwarded our details on to Julie Soroczyn, the Managing Director of PhysioPod, who to our great delight, allowed us to have a unit on a trial basis. We could never be more grateful of the pure compassion and thought that these three individual women have shown to our family in the past few months. There are we have learnt, very few people or clinics that use this great machine on young children, especially those as young as Lincoln, yet it is very safe to do so, providing that there are no contraindication. When Julie said she had a machine that she would be able to loan to us for a short period of time we were so grateful that we had been lucky enough to be given this great opportunity.

Contact:
Mary Fickling
PhysioPod® UK Limited
Sherbrook Road
Daybrook, Nottingham NG5 6AS
01159 167 685
[email protected]
http://www.physiopod.co.uk