Fetal alcohol spectrum disorder


Posted February 9, 2018 by drakejones1

Fetal Alcohol Spectrum Disorder, (FASD) is not a mental health diagnosis or a medical diagnosis but is an umbrella term used to describe a range of syndromes and disorders

 
What Is Fetal Alcohol and What Does It Have To Do With Me?




Etal Alcohol Spectrum Disorder, (FASD) is not a mental health diagnosis or a medical investigation but is an umbrella term used to refer to a selection of syndromes and disorders that can occur in a young child whose mother consumed alcohol during pregnancy. The symptoms and effects vary in severity. Many children share the common effects including psychological, physical and learning difficulties. The common physical characteristics that could be associated with FASD are facial deformities, growth deficits, heart, liver, kidney defects, vision and hearing problems in addition to permanent brain damage. FASD is the only 100% preventable cause of mental retardation and birth defects in the United States and FASD is 100% Nominal. It is estimated that FASD impacts 40,000 infants every year. This is more than Spinal Bifida, Down Syndrome and Muscular Dystrophy combined.

Alcohol damages the areas of the brain that gives us memory, self control, judgment and planner. Children with FASD frequently have problems with learning, memory, attention, central nervous system, and problem solving abilities which might have lifelong consequences. FASD is a permanent condition and affects every facet of the child's life and the life of the family.

The emotional toll on families cannot be underestimated. For birth parents, admitting their child's mental retardation, birth defects, or neurodevelopment disorders are a consequence of maternal prenatal alcohol intake is quite tricky to confront. For adoptive or foster parents, discovering that their child suffers from FASD after years of attempting to comprehend that his behavioral and cognitive issues contributes to feelings of isolation and frustration. As an adoptive mom I will tell you raising a child with FASD is the hardest but the most rewarding thing I have ever done. Andrew is currently 13 years old and is in the seventh grade. He's sweet, generous, loving and incredibly naive. In addition, he has exhibited a lot of the symptoms related to FASD because the day we brought him home at 1 week old. He cried all the time! Until he was 3 years old on medication he never slept for over half an hour at one time, day or night. To say life seemed impossible is actually an understatement. He required constant attention and should I let him out of my sight in a different room for one minute he would destroy it. When I was not right beside him when he had a bowel movement in his diaper he'd take off it and then smear feces all over the walls, bed and carpets. We had to put a lock on the refrigerator because he would climb out of his crib at the middle of night and dump everything out of the refrigerator smearing it in the carpeting, walls, and beds. For many years we knew that there were serious difficulties, but no one can help us. Each of the professionals said that his behaviors were out of their experience. We went from Doctor to Doctor, counsel to counselor and hunted everywhere for answers for our family. From the age of three, he was thrown from every daycare in our area, went through a minimum of 30 babysitters, and couldn't stay in the nursery at Church. He was quite violent toward everybody; however the majority of his rages were taken out on me. He would sting me, hit me and throw things at me. He'd put holes in the wall, windows, threw rocks at us, as well as the cars and was basically never pleased. When he started college a completely new nightmare began. The fourth day of school he had thrown toys, supplies and destroyed the classroom than ran from the room causing the teacher to need to leave other students to chase my 4 year old. He had been transferred to an emotionally handicapped course where they had experience with other children like him.

From the time he was 5 he had many investigations I lost count, but not one of them actually explained the seriousness of his behaviors. We had attempted 21 different medications and attempted at least 4 unique sorts of treatment. We began exploring the net and found a few websites about FASD and discovered that there have been several areas from the USA that specialized in FASD. Andrew and I packed up, leaving my husband and other two kids in the home and moved in search of an investigation. We moved to Baltimore, MD and watched a FASD pro that finally gave him an accurate diagnosis of Fetal Alcohol Syndrome. While we had a diagnosis nobody seemed able to assist us get his behavior in check and his behavior was becoming worse. At that moment, he was on 7 medications however none were effective. We went back online searching and learning about FASD and discovered that a "severe" conduct practice, The Marcus Institute, at Atlanta GA.. They observed his behaviors and they immediately asked if we'd be open to coming to Atlanta to endure a few months so he can attend the practice. This was their observation that his behaviors were something that would not ever get better without extreme intervention. At this time we had no option; he had been becoming bigger, stronger and more destructive regular. After fighting insurance issues, Andrew and I moved to Atlanta where he underwent treatment, training and testing for eight weeks.


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Last Updated February 9, 2018